Friday, July 30, 2021
a leap of faith ...
Wednesday, July 28, 2021
Words on Wednesday 7/28
This month, [Lissa is the host] for Words for Wednesday. Started by Delores ages ago, it is now hosted by different people each month on various blogs around the world. The aim of Words for Wednesday is to encourage us to write using some or all of the prompts. Her prompts today are inspired by The Secret Garden by Frances Hodgson Burnett.
~*~*~
Her fear was like a secret fire burning within her, and she hated it. Despised it even. There had been periods of her life when it controlled her. After a time, however, she would stomp it out and rise up to face it. Often at great physical risk to herself.
Now, she went on a garden walk, with the weight of the world on her shoulders and very nearly consumed by the fear of what uncertainties lay ahead. Her mind raced at times, and she wished ~ prayed even ~ that she could abandon everything unknown for some magic that would cure her.
Looking back on her life, she had no regrets ... well, almost none. That last marriage probably should have been a do-over back to the moment she agreed to let him go with her to Texas. But what could she do now? Nothing lasted forever and for that, she was grateful that the marriage hadn't.
The key to happiness she realized, wasn't in only the happy moments. It was being able to spring back from the bad with a sense of purpose, and with a new respect for the lessons of life.
Monday, July 26, 2021
monday part two ...
Image Source: WeHeartIt.com |
... or rather "anticipation" as sung by Carly Simon before Heinz Ketchup made it more about tomatoes.
Today's appointments ... one a boob smasher, and the other even more painful ... went as well as could be expected. The mammogram was actually not painful compared to previous ones, thanks to a new 3D screening process. However, there were three or four biopsies taken during the "other" exam and those were very uncomfortable.
I like Dr. Connie. She is straight to the point, which startled me at first. She had been able to view the CT images and read the report before I saw her. But having a doctor come in and tell you radiation is going to give the best odds is not how most great conversations start. Memorable ones, yes, but not always good ones. I told her I wasn't sure I wanted to do radiation because I didn't have a big support system here and couldn't afford to miss a lot of work. She said we could do nothing, I could walk out the door right then, but in five weeks I could be out of work anyway and in hospice. With that thought in mind, I agreed to do the exam and then see what came back with the biopsy results.
After talking to Dr. K when I got home, he clarified her "opening statement" can be an example of how different surgeons and general practitioners view cancer. Surgeons sometimes want to approach everything as cancer until it is proven not. GPs sometimes want to approach everything as not cancer until it is proven it is.
I'm not going to let it worry me until I know I have something to worry about. Dr. K pointed out some of my recent test results seem to indicate whatever was wrong is improving, but at the same time, he told me there were quite a few enlarged lymph nodes. If it isn't something gynecological, then it could still be something with my colon based on where they were. It is unlikely they are related to whatever is going on with my liver. Between the two doctors, I feel I'm getting honest conversations, and good perspectives.
This next week will be filled with anticipation for the results of the biopsies, scheduling more diagnostic exams (MRI and the dreaded colonoscopy), and taking everything one day at a time.
This is my favorite card, and I received it years before my retinal tear took most of the vision in my right eye. One of my surgeries was just before changing jobs, and I hung this card on my cubical wall when I started my new job with a patch over my eye. My Program Manager, call sign Rowdy, asked me if someone was making fun of me by posting the card, and I told him no, it was mine. He said I would fit in just perfect there, and my call sign of Cyclops was born.
Laughter is healing.
monday morning ...
The weekend was quiet with some things accomplished and some things not.
I finished cleaning the downstairs; got the stairs going up and my bedroom vacuumed; folded, and put away the clean clothes. Trust me, that alone is an accomplishment because sometimes I can have two weeks of clothes in the dryer, or just pull from a stack of three weeks worth of clean that is piled up in a chair. I think I was anxious cleaning in anticipation of this afternoon's GYN appointment.
Saturday night I hung out with the ten-year-old son of a friend and used that as an excuse to rewatch some animated movies I hadn't seen in a while.
I was up and down all Saturday night with a migraine, I've had headaches for the past week and my blood pressure has been a bit on the almost high side, with my calves, ankles (cankles), and feet swelling at night. I'll probably reach out to my doctor about getting back on medication for the blood pressure. I'm not sure if it is caused by the humidity ~ it has been in the 80%s for the last two months and I'm not used to humidity for this long yet.
This weekend I also came to the decision that I'm not going to let the financial burden of medical bills stress me out and drag me down right now. If I'm given a diagnosis with a simple fix and a positive outlook for extended years, I will file bankruptcy after the beginning of the year. If it is a bad diagnosis, without a simple fix, and a short life expectancy ... then I will just not even worry about it. What are they going to do? Kill me? Bwahahahahahaha.
Thursday, July 22, 2021
thursday blues ...
Image Source: WeHeartIt.com |
Now that I know something is going on physically with me, it seems like the "little" pains I've had for the past year or so and ignored as just my fibromyalgia have become more frequent and intense. But I don't know if that is just psychological because I'm more aware, or a real change in the intensity because of it progressing. As I told my doctor, I'm so used to being IN pain, that I don't even acknowledge it anymore and have developed a high tolerance.
The bills for my April hospital stay of four nights are finally catching up to me after going through my previous health insurance plan's processing. If cancer doesn't kill me, the stress of the bills will. I found out on Tuesday that I owe about $30k unless the hospital has a "charity" willing to offer financial assistance. I feel like both the rock and the hard place just fell on my head. I will be submitting the application to the hospital next Monday after my GYN appointment. Fingers crossed.
The more doctor/specialist visits, test appointments, and whatever treatment options I have will provide more bills, even if my insurance deductible was met with just the CT scan (my portion alone is $1,300), I will still have out of pocket costs associated with them. But they will also cause me to miss more hours from work, which will become an issue. Just one 8 hour day is a significant decrease in a week's pay, and I won't be able to keep with my original plan of just missing one day of work a month.
For laughs, I looked at what the social security disability insurance process was and found out that at the very least, I would be eligible for payments five months AFTER diagnosis as long as I am no longer able to do my job. That time frame is not automatic and does not include the time to apply, fill out forms, respond to requests for more information from my doctor, etc. In reality, depending on my health, I may be out of work for a year before receiving any payments and even if they include back pay to the original diagnosis date ... that is terrifying to me. I don't have any long or short disability payment insurance with my job.
A co-worker I've confided in feels I should set up a GoFundMe account to help with financial needs. I'm struggling with that because I've always been a giver, not an asker. I guess I just figured that this would be a situation where I would go to sleep one night and not wake up. The realization that it could actually be a long, drawn-out process ... a long, drawn-out, expensive process ... is alarming.
But I will take winning lottery numbers if anyone from the future happens to have them.
*~*~*
In the meantime, I've decided that since it is unlikely I will ever get back to Germany again I found a German restaurant about an hour and a half away, as well as an Aldi's store near it. I have calendared trips over that way about once a month starting in September as long as I can make the drive. Just in time for Octoberfest and Christmas!
The West Virginia State Fair is coming in August, and I was considering going, however, crowds make me uncomfortable these days with so many people being anti-vax anti-mask anti-social distancing ... I think I will probably wind up staying home and watching Charlotte's Web on a streaming movie channel or something. Buy a bag of cotton candy at the grocery store, pop up extra buttered popcorn, cook up corn dogs, funnel cakes, and get me a big glass of ice-cold lemonade. If I really have to have the whole state fair experience, I can order [these candles from Etsy that smell like cow pies and pig farts].
Wednesday, July 21, 2021
Words on Wednesday 7/21
Monday, July 19, 2021
monday ...
After Friday's news threw me for a small loop, the rest of the weekend was somewhat productive. My sore throat progressed to a full chest cold, but after I'm up and moving around, I feel a little better. Hospital cooties are the worst.
Number one on my do-do-to-do list for this morning was to try and get an earlier appointment with my GYN. It has now been rescheduled from 9 Aug to next Monday afternoon.
That's my story and I'm sticking to it.
Saturday, July 17, 2021
and the results are in ...
Naturally, after spending a few hours in the hospital (and stressed by the blowout), I started to catch a throat cold the next day so have been popping cough drops like candy and drinking an herbal throat coat with licorice in it.
Wednesday, July 14, 2021
Tuesday's adventures ...
Image Source: WeHeartIt Because I know better than to try and take pictures on a foggy mountain road. |
I had to drink a full 20oz of "berry-flavored" contrast before my scans, and honestly, the berry flavoring did nothing to improve the taste, however, the ice did as it got colder. Unfortunately, by the time the ice had made a difference, it was pretty much gone.
There were two scans being done, one with the contrast I drank, and the other with an injected contrast. Therein lay the first hiccup of the day. As soon as the injection was started, my vein blew out, leaking blood and contrast all over the bedding and causing me incredible pain in my arm and hand. My hand cramped up into a claw. The pain eventually subsided and there was enough contrast in for a good scan before they had to stop it because of the pain. My arm is sore this morning and a little swollen, but not bruised yet.
So remember where I said clouds were low? Of course, I left my headlights on when I went into the hospital at 8a. When I tried to leave almost three hours later, my battery was dead. I waited about 15 minutes (all while a man was sitting in his truck right next to me with windows open and could clearly hear my alternator clicking ~ so much for WV chivalry) before finally calling for roadside assistance. When they finally said they would be 90 minutes before getting to me, I tried one last time, and thankfully, my truck fired up. I canceled the assistance and headed out.
My next appointment was 2p so I had a few hours to kill before I needed to be anywhere. I found a florist shop that had some live houseplants and picked up two English Ivy plants for my birdcages before heading to the appointment a little early. Pictures to follow this weekend of the plants in the cages after I get one of them repotted.
More blood was drawn ~ this time intentionally ~ at the follow-up appointment to see if I'm still anemic, and if the one marker for cancer or an autoimmune disorder has gone up or down. The hope is that it has dropped and that I'm no longer anemic. Otherwise, my doctor was very pleased that the prayers, good wishes, virtual hugs, and positive juju seem to have been working to turn things around for me.
Results of the CT scans and new bloodwork should be back by the end of this week, so I will post an update as soon as I know.
Monday, July 12, 2021
so i did this thing ...
Saturday, July 10, 2021
little man & fireflies ...
I chose to take him there only because they offered Saturday hours and his normal groomer doesn't, but we won't be going back. She did an okay job on his cut, but the shop itself was unpleasant. There were several tanks of rats and mice that she kept as "feeders" for snakes, and the odor was overwhelming.
Tonight he is exhausted and unwilling to leave my side.
While I was waiting for Charlie to get done, I did some shopping for bargains at the Goodwill and a place called Ollies. I found a few used hardback books that are older and perfect for some craft projects I will share in a future post. I also found a decent price on a small food processor to replace one I left in Wisconsin, and some metal hanging baskets with coconut liners that are perfect for the hanging bird bath/feeders I wanted to make.
Last night I sat on the back patio for a while watching the fireflies. Unfortunately, one of the neighbors still had some fireworks, and Charlie wasn't really pleased with the noise. As I'm typing this, someone else just set off more fireworks. I think I agree with Australia's policy of not making fireworks available to the general public. This time, however, Charlie is so exhausted he didn't even lift his head.
Monday, July 5, 2021
Monday ...
I walked into town yesterday afternoon to watch the 4th of July parade. It was sponsored by The Greenbrier Resort, so was a little bit larger than the Dandelion Festival Parade.
The big celebrity was a bulldog. Yes, a bulldog. If I'd known who it was at the time, I would have rushed to get a selfie with him as some people did. But "Babydog" was unknown to me until later. He is the state governor's dog, and the official mascot of the "Do it for Babydog" campaign to encourage people to get the COVID-19 vaccine.
While waiting for the parade to start, I stopped in a coffee shop [The Local WV] that recently reopened after the flood of 2016 and got a (larger than expected) scoop of butter pecan ice cream, and a chocolate chunk with PRETZELS cookie. My new favorite cookie combo!
Fireworks started shortly after sundown, with my landlord setting off almost as many as The Greenbrier Resort did, only much (MUCH) closer. Fortunately, Charlie is unaffected by the sound, altho the cats aren't fond of it. It reminded me of the year in Wisconsin that I was on the dock where they were actually setting off the city's fireworks.
Sunday, July 4, 2021
freedom ...
Image Source: WeHeartIt.com |
Slavery for blacks in this country ended just 155 years ago, a fact that I find discouraging because there is still so much slavery going on here and around the world. And even though they were recognized as "free men," blacks were still segregated until the 1960s ~ in my lifetime! It took 102 years for this country to recognize those free men as "equal men."
Yet this morning my newsfeed had the story of a white man getting caught putting a KKK note on the coat of a black man, and I feel like there was nothing learned or gained in those 155 years.
Our history doesn't speak of the First People forced from their lands for white man's advances, their children ripped from their arms to be "saved" by the white man's religions. We don't mention the thousands of Chinese slaves used to build the railroads. We don't speak of the illegal immigrants from Mexico or other countries who are "enslaved" by the threat of calling INS and forced to work and live in horrible conditions, for wages that no "American" would accept.
Little is said most of the time in the news about the slaves in other countries. We are a society more interested in the love lives of our celebrities than the conditions of people in the world. People. Humans. Just like us, who are enslaved by others. We care more about social media influencers and "flash-in-the-pan" wannabe celebrities than our neighbors.
Why should we celebrate a day in which there were really no freedoms gained? The Independence Day I would really want to celebrate is a day when ALL people are free, and ALL people are considered equal. Can't we strive for that?